Hola, entrar en la pag. de la Coalition MHE: www.mhecoalition.org
Piden participantes para el Estudio que esta realizando la Dr. Chistine Alvarez.
Aqui el documento:
MORE PARTICIPANTS NEEDED FOR QUALITY OF LIFE STUDY: "The health related quality of life in patients with hereditary multiple osteochondromas," being conducted by Dr. Christine Alvarez, MD, FRCSC, MSc, The University of British Columbia, British Columbia's Children's Hospital, is still accepting participants.
Children and adults diagnosed with MHE/HME/MO are welcome to participate in this questionnaire study which is attempting to establish how the life of people with MHE is impacted and to develop a disease specific questionnaire.
Please contact Harpreet Chhina, Study Research Coordinator, at firstname.lastname@example.org and she will send you an Information and Consent Form for your review and signature.